11/18/22

Sorry it took so long to update this time. Rie’s lengthy daily scalp care has dominated our time and energy since the last update. The extensive scalp dermatitis (scar dandruff) is almost completely resolved. Praise God. The dermatologist was very pleased and has reduced the treatment frequency to every other day for a while then once to twice a week forever for prevention.  Walker-walking and stair-climbing  are going well. She’s enjoying 30 to 60 minutes a day on the stationary bike which also has concurrent upper body tension straps for increasing flexibility and strength.  Voice volume is improving. Per speech therapist, we’re trying to sing often (whenever others are at a safe distance)! We saw Rie’s rehab doctor yesterday for the second round of Botox injections to the spastic right leg muscles so we can work on strengthening the opposite muscles for better range and function. Probably will need Botox every few months for a while. Rie is tolerating outings for several hours at a time so we’re driving Mia to all of her school and fun activities and we’re eating fast food in the car once or twice a day which brings the family together and gets Mia out of her dark dungeon bedroom to let her see the Light.  The three of us are enjoying our bedtime reading together when we focus on God’s Goodness. Mia then sings for us or shares a fun video. In order to maintain my medical licenses, I have to catch up with two years of required reading by mid December so updates may not come as often till then. Love and blessings to all.❤️🙏